Today was a really good day, Sam and James both made some great progress. We fed them more by tube today, enough to give them more energy but still feel hungry. Sam drank maybe an ounce this morning, and James didn't want anything. I gave them almost a full tube feeding at lunchtime to give them some more energy, then this afternoon after their nap time Sam asked for a drink. He drank a couple ounces, and James decided he wanted some as well. James didn't drink a lot, but he seemed to be trusting the cup more than he has in the past few days.
I gave James another tube feeding around 3:30, but didn't give any to Sam because he had been drinking more. I expected Sam to ask me to give him some in his tube when he saw me tube feeding James, but he actually climbed up in his chair at the table and asked for chocolate milk instead! I was so proud of him! Then around 5pm Sam asked for his drink again, and this time he drank about 3 ounces. That is the most he has ever taken at one time! When James saw Sam drinking, he also wanted some and he drank a couple ounces too!
At dinner time, Sam threw a tantrum and didn't want to sit at the table with us, but that is pretty normal for him. James did sit with us though, and sipped on his chocolate milk the whole time. He was so cautious about drinking yesterday and the day before and Heidi thought for sure he would take at least a few more days to get over that and want to try again, but he is James and he never ceases to surprise everyone by how tough he is. I am so proud of both James and Sam for all they did today.
Heidi is leaving tomorrow so she made a follow up plan/ schedule for me to follow for now. Once the boys start taking more by mouth, we can decrease their tube feedings even more until they no longer need their tubes at all. It shouldn't take too long to get to that point as long as they keep up what they are doing. We are going to miss her, especially the boys. Everytime she shows up Sam says, "Heidi home, yay!" So I think they will be sad for awhile when they realize she's not coming back. We are so grateful for what she is doing for our boys and our family.
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