Tuesday, March 21, 2017

Day 2

The boys did great today, they each drank about 2 ounces of Carnation instant breakfast throughout the day.  Heidi came for breakfast, lunch, and an afternoon snack.  James did especially well tasting new things like chocolate pudding, fruit loops (or "tiny donuts" as they were calling them), and a few other things.  They are starting to get pretty hungry and grumpy.  The only tube feedings they had today were about two-thirds of their 5pm feeding and their whole 8pm feeding, just so they can sleep well tonight.  Unfortunately, James threw up a little after we put him to bed.  I think after being so hungry all day, getting his stomach pumped full of formula at the end of the day was just a little too much for him.

It is hard seeing them so uncomfortable, sometimes I just want to sneak some formula into their tubes to make them happy again but I know that would defeat the purpose of all this.  They have lost a little weight already and their clothes are fitting a little looser.  They have always struggled to gain weight, so seeing them lose it so quickly is breaking my heart.  I am praying so hard that they will understand soon why they need to eat, and that they will be able to put the weight back on.  They are making improvements though so that is all I can really hope for right now.


1 comment:

  1. I'm so glad I checked my blog reading list today! Wow. This is a huge deal! That's so awesome that they ate! And I can't even imagine how hard it must be to see them hungry. I'm praying for you so hard!

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